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Here are some tips for dealing with common symptoms, from amyloidosis patients’ advice:

 

Dealing with postural hypotension

  • After sitting down for more than half an hour, always stand for about 30 seconds before moving off.
  • If feeling lightheaded or you have ringing in your ears when walking, stand still for a few moments until it passes
  • If it gets really bad always ask for help or sit down
  • The postural hypotension can get worse when you get a cold or virus. Taking the standard doses of paracetamol can help
  • When getting up from bed in the morning, sit on the side for a few moments before walking off
  • Never run and always pace yourself
  • Always allow more time than you think you need!

 

Dealing with painful neuropathy symptoms

  • Weekly muscle build-up and light exercise at the gym helps a lot
  • Having a regular leg and feet massage eases leg pains and stiffness
  • Keep your legs and feet always moisturized
  • Carry out daily hand exercise to keep them working

 

Diet

Adjusting the diet can help bowel problems, particularly after level transplant,

  • Reducing the amount of wheat, e.g. sandwiches, cakes, pastry
  • Try not to have processed foods and have cooked food at lunchtime and in the evenings
  • Cut out sugar as much as possible
  • Restrict to only having mild curries